Wednesday, December 11, 2019

TPX-0005 or 1/312

December 11th, 2019: UCI Irvine.

Here I come!

Going in for my one-week check up under the new treatment. I hit the jackpot when they approved me for the latest clinical trail TPX-0005, the latest in TKIs to help combat lung cancer with a ROS-1 mutation. Tailored made for yours truly and a very much coveted medication among the cancer community.

1 in  312 are great odds!


To say that I am a lucky MoFo is an understatement. This clinical trail is open to only 312 worldwide participants in 12 hospitals stretching across the US, Europe and Korea, however this is only Phase ll of this study and it comes with its own unique side effects. Bearable at the moment, yet already better than the previous drug.

312 in the World!

I like my new team. Dr. Zhu is a specialist in treating ROS-1 cancer patients and has been at the forefront of many cancer clinical trails. I got to know of her from the ROS-1 Facebook group that I belong to. It's a great forum where other patients bearing this mutation can exchange info and support each other. You never feel alone when you exchange with other members, plus I feel like a big dog when I post there seeing as I'm one of the very few participating in TPX-0005.

Super Private FB group. We even have a secret handshake.

It's funny how this is all wrapped up in my life's goal now. Ten years ago I would never of thought something like this would be a defining part of my life, and now I'm solely depending on this to help heal me or at least grant me a few more years of solid life. Sigh, it's still quite a mind-fuck if you really think about it, but I am very grateful.

I feel like I'm standing on top of the World!

More on this later. Meanwhile:




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